At the beginning we all felt very sad and worried. Lots of people in my family kept phoning up and asking if I was OK. I was all muddled up and didn’t know what to think. I was worried about what my friends would say. I felt sorry for Jennie and Thomas because Mummy and Daddy were spending so much time with me and not with them. Mummy and Daddy were shocked because they had no idea that I had a serious illness.

Thomas kept cuddling me, that helped a bit. Jennie stayed normal, we just kept arguing and fighting! It took about a month before we got used to the idea of my illness.

I felt horrible, especially when I was tired. When I was walking around I sometimes bumped into the door handles, which hurt! Reading was hard because it felt like the writing was moving, and writing was difficult so I had to write in big letters. It all made me feel a bit left behind at school because I couldn’t work as neatly as I wanted to. I also found it hard because I had to hold on to the tables to keep me steady.